RESOURCE LIBRARY

Downloads:

http://www.childrens-specialized.org/Content/Uploads/Childrens%20Specialized/images/PedComCareAssoc.jpgPediatric Complex Care Association 

 

 

Organization Name

Description

Website

Commonwealth of Massachusetts
Website Information
Home Page

Senators

House of Representatives

Department of Public Health

Medical Review Team - Programs & Services

Medicaid website

Kaileigh Mulligan Program -  Mass Health – Insurance – Apply – Applicants of any Age – Persons Living at Home Needing Home Long-Term-Care Services
www.mass.gov

www.malegislature.gov/People/Senate

www.malegislature.gov/People/House

www.mass.gov/dph

www.mass.gov/dph

 
www.mass.gov/masshealth

www.mass.gov/masshealth

 

Supplemental Security Income in Massachusetts

SSI information -

http://ssa.gov/pubs/11130.html

Children with Special Health Care Needs

provides comprehensive, affordable, accessible, culturally competent, high quality care and consumer education for everyone

www.hcfama.org

H.A.L.O. -

Help A Little One

The Help A Little One Foundation is dedicated to enhancing the quality of life for children with neurological impairment. H.A.L.O. fulfills requests that enrich or make life easier for children in pediatric nursing homes and supports families who care for their children at home. http://www.halofoundation.org/

Easter Seals of Mass. 

Equipment, education and loaning program

www.eastersealsma.org

Family TIES

Resource network for families whose children have special needs.

www.massfamilyties.org

Kids with Tubes

Support for families of children with g-tubes

www.kidswithtubes.org

Make a Wish Foundation of Greater Boston

Dedicated to granting the favorite wishes of children diagnosed with life threatening illnesses

www.mass.wish.org

Federation for Children with Special Needs

A center for parents and parent organizations to work together on behalf of children with special needs and their families.

www.fcsn.org

Disease/Syndrome Associated websites: 

 

Massachusetts Spina Bifida Association

Muscular Dystrophy Association

National Organization for Rare Disorders

Spinal Muscular Atrophy Foundation

United Cerebral Palsy of Metro Boston, Inc.
www.msbaweb.org

www.mda.org

www.rarediseases.org

www.smafoundation.org

www.ucp.org

Alliance for Technology Access

Technology for children and adults with disabilities and functional limitations.

www.ataccess.org   

Computer Technology Resources

Input on best technology for student needs

www.cec.sped.org

Family Center on Technology and Disability

Assists in evaluating technology for individuals.

www.fctd.info 

Catastrophic Illness in Children's Relief Fund

Helps families bear the excessive financial burdens associated with the care of children with special health care needs and disabilities.

http://www.mass.gov/cicrf/cicrf.htm

Floating Hospital for Children

800 Washington Street    Boston, MA 02111
(617)-363-5000

https://www.floatinghospital.org/

Tufts-Medical Center, Inc.

800 Washington Street     Boston, MA 02111
(617)-363-5000

https://www.tuftsmedicalcenter.org

Children’s Hospital Boston

300 Longwood Avenue     Boston, MA 02115
(617) 355-6000

www.childrenshospital.org

Massachusetts  General Hospital

55 Fruit Street      Boston MA 02114
(617)-726-2000

www.massgeneral.org

Boston Medical Center

One Boston Medical Center Place   Boston, MA 02118
(617)-638-8000

www.bmc.org

Lowell General Hospital

295 Varnum Ave.  Lowell, MA 01854
(978) 937-6000

www.lowellgeneral.org

North Shore Children’s Hospital

57 Highland Avenue  Salem MA 01970
(978) 745-2100

http://nsmc.partners.org/pediatrics

UMass Memorial Medical Center

119 Belmont Street,      Worcester, MA 01605
(508)-334-1000

www.umassmemorial.org

BayState Children's Hospital 759 Chestnut Street
Springfield, MA 01199
413-794-0000
http://baystatehealth.com/
Cerebral Palsy Guide

3208 E. Colonial Dr.

#241

Orlando, FL 32803
1-855-329-1008  
 

www.cerebralpalsyguide.com
Cerebral Palsy Group

Cerebral Palsy Group provides educational information and support to those who have been affected by cerebral palsy.

https://cerebralpalsygroup.com