Resources library

Downloads:

Pediatric Complex Care
Association

  • Pediatric Complex Care Association – Advocate, collaborate and educate professionals to
    better serve the needs of medically complex children.

Organization Name

Description

Website
Commonwealth of Massachusetts
Website Information
Home Page
Senators
House of Representatives
Department of Public Health
Medical Review Team – Programs & Services
Medicaid website
Kaileigh Mulligan Program –  Mass Health – Insurance – Apply –
Applicants of any Age – Persons Living at Home Needing Home Long-Term-Care
Services
www.mass.gov
www.malegislature.gov/People/Senate
www.malegislature.gov/People/House
www.mass.gov/dph
www.mass.gov/dph
www.mass.gov/masshealth
Supplemental Security Income in Massachusetts SSI information – Supplemental Security Income (SSI) | SSA
Children with Special Health Care Needs provides comprehensive, affordable, accessible, culturally competent,
high quality care and consumer education for everyone		 www.hcfama.org
Easter Seals of Mass.  education and loaning program www.eastersealsma.org
Family TIES Resource network for families whose children have special needs. www.massfamilyties.org
Make a Wish Foundation of Greater Boston Dedicated to granting the favorite wishes of children diagnosed with
life threatening illnesses		 Make-A-Wish America
Federation for Children with Special Needs A center for parents and parent organizations to work together on
behalf of children with special needs and their families.		 www.fcsn.org
Disease/Syndrome Associated websites: 
Massachusetts Spina Bifida Association
Muscular Dystrophy Association
National Organization for Rare Disorders
Spinal Muscular Atrophy Foundation
United Cerebral Palsy of Metro Boston, Inc.
Spina Bifida Association of Greater New
England
www.mda.org
www.rarediseases.org
www.smafoundation.org
www.ucp.org
Computer Technology Resources Input on best technology for student needs www.cec.sped.org
Family Center on Technology and Disability Assists in evaluating technology for individuals. www.fctd.info
Catastrophic Illness in Children’s Relief Fund Helps families bear the excessive financial burdens associated with the
care of children with special health care needs and disabilities.		 Catastrophic Illness in Children Relief Fund (CICRF) |
Mass.gov
Tufts-Medical Center, Inc. 800 Washington Street     Boston, MA 02111
(617)-363-5000		 https://www.tuftsmedicalcenter.org
Children’s Hospital Boston 300 Longwood Avenue     Boston, MA 02115
(617) 355-6000		 www.childrenshospital.org
Massachusetts  General Hospital 55 Fruit Street      Boston MA 02114
(617)-726-2000		 www.massgeneral.org
Boston Medical Center One Boston Medical Center Place   Boston, MA 02118
(617)-638-8000		 www.bmc.org
Lowell General Hospital 295 Varnum Ave.  Lowell, MA 01854
(978) 937-6000		 www.lowellgeneral.org
UMass Memorial Medical Center 119 Belmont Street, Worcester, MA 01605
(508)-334-1000		 www.umassmemorial.org
BayState Children’s Hospital 759 Chestnut Street
Springfield, MA 01199
413-794-0000		 http://baystatehealth.com/
Cerebral Palsy Guide 3208 E. Colonial Dr. Orlando, FL 32803
1-855-329-1008    		 www.cerebralpalsyguide.com
Medical Review Team (MRT) Department of public health- approval for stay at NEPC Medical Review Team | Mass.gov
Cohen Cleary, P.C Attorney to help with guardianship process Cohen Cleary, P.C. | Taunton, Plymouth,
Quincy MA Attorney
508-880-6677
Department of Public Health – information line 250 Washington Street Boston, MA 02108 1-617-624-6000
Masshealth/Medicaid Enrollment centers located in Tewksbury, Chelsea, Taunton, and Springfield, M 1-800-841-2900
Long Term Care Ombudsman 280 Merrimack Street, Suite 400 Lawrence, MA 01843 info@agespan.org
1-978-651-3063
Department of Children and Families (DCF) 600 Washington Street Boston, MA 02111 1-800-792-5200
dcfcommissioner@state.ma.us
Department of Developmental Services (DDS) Lowell office 325 Chelmsford Street Lowell, MA 01851 DDSInfo@mass.gov
1-978-322-4300
Massachusetts Commission for the Blind 600 Washington Street Boston, MA 02111 mcbinfo@mass.gov
1-617-727-5550
Massachusetts Commission for the Deaf and Hard of Hearing 600 Washington Street Boston, MA 02111 1-617-740-1600
Massability careers and training, home and community life, and legal rights and
benefits		 MassAbility | Mass.gov
Social Security Administration Offices located throughout Massachusetts www.ssa.gov to find location closest to you
1-800-325-0778