Resources library


Pediatric Complex Care Association

Organization Name



Commonwealth of Massachusetts
Website Information
Home Page
House of Representatives
Department of Public Health
Medical Review Team – Programs & Services
Medicaid website
Kaileigh Mulligan Program –  Mass Health – Insurance – Apply – Applicants of any Age – Persons Living at Home Needing Home Long-Term-Care Services

Supplemental Security Income in Massachusetts SSI information –
Children with Special Health Care Needs provides comprehensive, affordable, accessible, culturally competent, high quality care and consumer education for everyone
H.A.L.O. –

Help A Little One

The Help A Little One Foundation is dedicated to enhancing the quality of life for children with neurological impairment. H.A.L.O. fulfills requests that enrich or make life easier for children in pediatric nursing homes and supports families who care for their children at home.
Easter Seals of Mass.  Equipment, education and loaning program
Family TIES Resource network for families whose children have special needs.
Kids with Tubes Support for families of children with g-tubes
Make a Wish Foundation of Greater Boston Dedicated to granting the favorite wishes of children diagnosed with life threatening illnesses
Federation for Children with Special Needs A center for parents and parent organizations to work together on behalf of children with special needs and their families.
Disease/Syndrome Associated websites: 
Massachusetts Spina Bifida Association
Muscular Dystrophy Association
National Organization for Rare Disorders
Spinal Muscular Atrophy Foundation
United Cerebral Palsy of Metro Boston, Inc.
Alliance for Technology Access
Technology for children and adults with disabilities and functional limitations.
Computer Technology Resources Input on best technology for student needs
Family Center on Technology and Disability Assists in evaluating technology for individuals.
Catastrophic Illness in Children’s Relief Fund Helps families bear the excessive financial burdens associated with the care of children with special health care needs and disabilities.
Floating Hospital for Children 800 Washington Street    Boston, MA 02111
Tufts-Medical Center, Inc. 800 Washington Street     Boston, MA 02111
Children’s Hospital Boston 300 Longwood Avenue     Boston, MA 02115
(617) 355-6000
Massachusetts  General Hospital 55 Fruit Street      Boston MA 02114
Boston Medical Center One Boston Medical Center Place   Boston, MA 02118
Lowell General Hospital 295 Varnum Ave.  Lowell, MA 01854
(978) 937-6000
North Shore Children’s Hospital 57 Highland Avenue  Salem MA 01970
(978) 745-2100
UMass Memorial Medical Center

119 Belmont Street,      Worcester, MA 01605
BayState Children’s Hospital 759 Chestnut Street
Springfield, MA 01199
Cerebral Palsy Guide 3208 E. Colonial Dr.


Orlando, FL 32803
Cerebral Palsy Group Cerebral Palsy Group provides educational information and support to those who have been affected by cerebral palsy.